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A Dedication to Resourceful Living: A group approach to focus on what matters to the members of our community whose lives are impacted by chronic lung disease.

Breath Matters Virginia Lung Support Group

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MAY 12, 2014

Attorney Joley Eason

TOPIC:

Spring Clean Your Estate Plan:
Estate Planning Essentials

FREE PLANNING KITS WILL BE PROVIDED

EASON speaker May 2014 Breath Matters

Elder Lawyer, Thompson McMullan, Richmond VA

Joley L. Eason is an associate with the law firm of ThompsonMcMullan in Richmond.

She practices in the areas of estate and disability planning, estate and trust administration, fiduciary litigation, guardianship and conservatorship of disabled and incapacitated adults, Medicaid and long-term care planning, Medicare counseling and advocacy, and Social Security, Disability, Supplemental Security Income and pension benefit assistance.

A native of Marion County, Georgia, Joley graduated from the College of William & Mary in Williamsburg, Virginia, with a dual Bachelor of Arts degree in the Thomas Jefferson Program in Public Policy and Sociology. Thereafter, she received her law degree and a Certificate in Health Law from the University of Pittsburgh School of Law in 2012.

During law school, she interned for the University of Pittsburgh Elder Law Clinic, and gained experience in guardianship, estate planning, and Social Security, Medicare, and Medicaid issue resolution. She also interned for the State Health Insurance Assistance Program, and counseled Medicare participants in plan selection and benefits.

Ms. Eason participates in a number of organizations, and serves on the Elder Law Section Council of the Virginia Bar Association, the Board for the Metropolitan Richmond Women’s Bar Association, and the Multidisciplinary Panel for Jewish Family Services Public Guardianship Program. She chairs a monthly meeting for Richmond Elder Law Attorneys, and volunteer as an attorney for LINC, JusticeServer, Senior Connections, and the Virginia National Guard Service Program. She has written several publications for the National Business Institute and Virginia Lawyers Weekly, and is a frequent speaker on elder law topics such as Medicare, Medicaid, guardianship, estate and long-term care planning.

She received the 2014 Krista Latshaw Volunteer Attorney of the Year Award from LINC for her pro bono volunteer work for cancer patients and their families.


Free Valet Parking

1:15 to 3:00 PM

Come Early! Refreshments provided!

Kraus Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

You're Invited!

Directions and Map

MAP and DIRECTIONS

ALL BREATHMATTERS MEETINGS ARE FREE AND ARE OPEN TO THE PUBLIC


THIS MEETING SPONSORED BY

Care Alternatives Hospice

LLC (Hospice)

10571 Telegraph  Road, Suite 203
Glen Allen, Virginia 23059

Lucy Keesee

(804)673-1330 (Office)  

CARE ALTERNATIVES

CARE ALTERNATIVES WEB SITE


Important news on Idiopathic Pulmonary Fibrosis

This note came into Breath matters March 2014:

Russell, I have some news about idiopathic pulmonary fibrosis, and I'm hoping that you could distribute it to your group at Breath Matters.

Intermune is holding a press conference today that will show positive results from the most recent pirfenidone study. This will likely make it the first FDA approved treatment for idiopathic pulmonary fibrosis.

They will take their information to the FDA later this year, and the medication may be available by the end of 2014. For those in the group with idiopathic pulmonary fibrosis, we are participating in an "open access and early availability" study that will help Intermune with additional safety and tolerability data.

More importantly, it will give patients with IPF access to pirfenidone before it becomes FDA available. There is no placebo arm, everyone will get the medication who qualifies.

If anyone is interested, the study coordinator is Amy Frayser (804-828-7966). Thanks, Dan Grinnan


NEW! ONLINE VIDEO FROM THE SEPT MEETING

Pulmonary Fibrosis and its stages

In this video recording of the Sept meeting, Dr. Dan Grinnan talks about Idiopathic Pulmonary Fibrosis, what this ailment is and the challenges in treating it.

This presentation features Dr. Grinnan discussing causes, the difficulties in diagnosis, and the varieties of treatment. A question and answer period is included at the end of the talk (part 6).

Video recorded September 9, 2013, at Kraus Auditorium at the Chippenham Medical Center, Richmond, VA 23225

Entire video is also online at the youtube.com Breathmatters site (along with 58 other videos from other Breath Matters events)


Donor Obituary: Hampton H. Rasnick

Hampton Hobert Rasnick, 82, of Chester, passed away on Wednesday, Sept. 4, 2013. He was the son of the late Hobert and Milly Stanley Rasnick. He was also preceded in death by: three brothers and two sisters. Mr. Rasnick served his country proudly in the Navy on the USS Coral Sea.

...His family will receive friends from 6 to 8 p.m. on Friday, Sept. 6, 2013, at the Hopewell Chapel of J.T. Morriss & Son Funeral Home and Cremation Service. Interment will be private.

In lieu of flowers, memorial contributions may be made to Breath Matters,
c/o Russell Glover, President,
11520 Edenberry Drive,
Richmond, VA
23236-4030

Or on line at www.breathmatters.org.

Condolences may be registered at www.jtmorriss.com.

Read the full obituary at The Progress-Index

Action Changes ThingsPulmonary Fibrosis Study

The Participation Program for Pulmonary Fibrosis (P3F) are currently recruiting pulmonary fibrosis patients (fibrosis of any etiology, not just IPF) to sign up for a Contact Registry as well as for a study in which we will examine the effects of daytime supplemental oxygen on a number of outcomes.

For our supplemental oxygen study, we are looking to enroll patients currently using supplemental oxygen and those likely to need supplemental oxygen in the next year or so.

We are asking for your help only to spread the word about this study to all the members of your support group. All data collection will occur either online or via mailings.

Packets containing a more detailed explanation of the study along with recruitment materials (e.g., flyers, business cards) are being mailed to you and should reach you in a few days.

We appreciate your time and attention, and we hope that you can help us by letting the members of your pulmonary fibrosis support network know about these exciting opportunities.

If you would like more information about the P3F, please check us out at www.PFresearch.org and follow us on Twitter at @DoctorSwig or email our Principal Investigator, Dr. Swigris, directly at swigrisj@njc.org.

P P P P F Study


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March 12, 2013 – COPD Advocacy Day

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Difficulties Receiving Oxygen?

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Feb 7

Respite Voucher Program

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THANK YOU TO FASTCAP

Pocket Mask

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

DAVID
SANDERS

David was a Board Member for Breath Matters.

Obituary Notice

READ MORE

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

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Amazing Raise

You Tube Videos Breathmatters Meetings

Using an Inhaler Online Video

IPF WORLD WEEK

LEARN MORE AT
THE IPF WEBSITE

ipfworld.org

Finding Hope in Hospice

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

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Questions?

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Russell Glover
(804) 378.0628
russellglover@
verizon.net

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Virginia Easy Access

For seniors and adults with disabilities and the providers that support them

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HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access


Stop Smoking Today Online!

Contact Susan J. Keen,
RN, OCN at
CJW Med Center

email: Susan.Keen [at] hcahealthcare.com


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BREATH MATTERS IS SPONSORED BY

INTERMUNE


OUR SPONSORS

Chippenham Hospital of CJW is our largest supporter

Lincare, Rachele Clement, Representative


Contact Breath Matters

Breath Matters - C/o Russell Glover, President - 11520 Edenberry Drive - Richmond, VA 23236-4030
804.378.0628

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